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Archive for August, 2012

Lyme AKA MSIDS

Posted by admin on Aug-5-2012

MULTIPLE SYSTEMIC INFECTIOUS DISEASE SYNDROME

Children with Lyme disease have unique issues. They don’t know what it feels like to be “normal”, so they and their parents might not know anything is wrong until teachers at school pick up on various issues. Unfortunately, the symptoms are often vague, so parents and teachers may suspect them of being lazy, daydreaming or even making things up to gain attention. ADD is a common diagnosis, and stimulants are often prescribed. Although stimulants may temporarily help the child finish his work, this does nothing to address the underlying issues or recapture health. It is also difficult for parents to know when their child’s symptoms are worse or better, because the children themselves are often unable to realize and verbalize. It is obviously hard to pinpoint any symptoms if you’ve never experienced normal healthy.

Children with Borrelia often feel left behind because of the social isolation caused being ‘sick’ so often. They often lag behind in school because their brains just won’t work right. Children suffer when their bodies hurt. They aren’t refreshed after a night’s sleep. They experience insomnia – the inability to easily fall asleep at night, which compounds their fatigue. They struggle in school simply because they don’t have the energy and focus needed. When they push themselves, more often than not, their health declines. Rest when feeling tired is very important!

Lyme pediatric specialist Charles Ray Jones, MD compiled a list of common symptoms of infection in his young patients:

  • severe fatigue unrelieved by rest
  • insomnia
  • headaches
  • nausea, abdominal pain
  • impaired concentration
  • poor short-term memory
  • inability to sustain attention
  • difficulty thinking and expressing thoughts
  • difficulty reading and writing
  • being overwhelmed by schoolwork
  • difficulty making decisions
  • confusion
  • dizziness
  • noise and light sensitivity

There are other symptoms, but I’ve only listed the ones that Sam experiences. Unfortunately for our daughter, I also have lyme, so treating it is challenging, as constant and debilitating fatigue is one of my most prominent symptoms. Blah!